Rare Cancers

I was told that I would miscarry my pregnancy, but continued to feel more pregnant, leading to my molar pregnancy diagnosis — a condition I’ve never heard of before. 

From Pfizer issuing a voluntary recall of three blood pressure drugs due to a high level of a cancer-causing chemical to “Today Show” co-ancho Hoda Kotb discussing her struggles with fertility after receiving a diagnosis of breast cancer, here’s what’s happening in the cancer space this week.

A patient’s experience with polycythemia vera — a rare blood cancer — led to her becoming an advocate for others to help ease all the nerves and uncertainty that many patients face when they hear they have cancer.

The rare cancer, known as adenoid cystic carcinoma, is diagnosed in fewer than 1,500 people in the United States each year and is often found in the salivary glands, a part of the body associated with helping a person swallow and digest food.

As surgery is the current standard of care for patients with tenosynovial giant cell tumor, the potential to add another treatment option with fewer complications may dramatically help patients with this rare tumor.

The number of people developing leptomeningeal disease is increasing for the same reason that diagnoses of brain metastases are on the rise: People are living longer, giving cancer more time to spread.

When I was diagnosed with cancer, I thought of only two things: my loved ones and how much time I had left with them.

Virgil Abloh, founder of Off-White and Louis Vuitton’s first Black creative director, died of cardiac angiosarcoma this Sunday.

Oncologists are learning that cancer can be treated during pregnancy with relative safety in the second and third trimester.

People without cancer may not understand the guilt survivors feel when their disease improves and others take a turn for the worse.

A first-of-its-kind trial underway in patients with penile cancer may lead to a more effective therapy sequence, potentially avoiding unnecessary surgery.

Knowing they’ve inherited a genetic mutation for stomach or breast cancer gives patients the power to plan ahead.

In his new memoir, a patient with central nervous system lymphoma emphasizes the importance of a positive mindset and a strong support system.

Read more about the current research for the disease, as well as how these advances impact the patients diagnosed with it.

Patients with this rare genetic condition develop tumors in various parts of their body, throughout their lifetime, requiring a multidisciplinary care team and constant screening and management.

It wasn’t just a miscarriage, it was a rare type of cancer called choriocarcinoma.

An online tool developed by oncologists for this rare diagnosis individualizes survival estimates, resulting in candid discussions and better decision-making.

Study findings from China show that a new treatment option improves survival outcomes in nasopharyngeal carcinoma, but can U.S. populations expect similar results?

A survivor of fibrosarcoma shares his journey through treatment and how he learned to build strength and confidence after the ordeal physically changed his face.

On social media, CURE® recently asked its readers with rare cancers what advice they would offer to fellow patients with a similar diagnosis. Here’s what they shared.

A cancer survivor writes about how he, like many, was blindsided by his diagnosis and what it was like to receive treatment for a rare disease: penile cancer.

After a median follow-up of 9.9 months, 38% of the trial participants experienced some degree of tumor shrinkage after receiving Opdivo in combination with Yervoy.

New treatments are needed for penile cancer, but it’s difficult to test drugs in clinical trials because the disease is so uncommon.

A woman shares her late husband’s journey with advanced penile cancer to help others receive a diagnosis early, when the disease is still highly treatable and even curable.

In this episode of the “CURE Talks Cancer” podcast, we spoke with an expert about some of the possible causes of penile cancer, as well as why research in the field is severely lacking and why it’s so important to inform the public about what to look for in terms of signs and symptoms of this disease.

Salivary cancer is a rare disease that has some of the greatest variances of all types of cancer.

Patients with neuroendocrine tumors have more treatment options than ever before.

Fighting retroperitoneal sarcoma can be like fighting a rare and giant beast.