MPN Heroes®

An MPN advocate used his personal experiences to inform his dedication to patient-centered research and support programs for patients.

A patient advocate discusses the difficulties of finding and participating in clinical trials for MPNs, and the impact on research and treatment development.

One of this year’s MPN Heroes® talked about the importance of a supportive care team, especially as every patient with MPN presents differently.

A doctor reflected on what it was like treating patients with myeloproliferative neoplasms years ago and how much treatments have improved.

An expert explained the benefits of patients with myeloproliferative neoplasms finding a community of people with similar diagnoses.

New treatments and ongoing trials are providing more options and better outcomes for patients with myeloproliferative neoplasms, an expert explained.

After being diagnosed with essential thrombocythemia, Marilyn Kay Edwards was not told much about her disease.

When caring for his wife with myelofibrosis, Ed Bartholemy focused on making her life as fun and positive as possible, despite her limitations.

CURE® honored eight MPN Heroes, which ranged from medical professionals to patients and caregivers, on the contributions they made in the field.

When going through cancer, former ‘Saturday Night Live’ cast member Vanessa Bayer found comedy. Now, she urges others to find what brings them joy.

One scientific development can lead to many more for patients with myeloproliferative neoplasms, a type of rare blood cancer, according to an expert.

After a patient is diagnosed with a rare disease such as a myeloproliferative neoplasm, learning about their condition and seeking expert clinicians can help put their mind at ease.

Dr. Naveen Pemmaraju outlines three reasons why he feels that there is “a momentum that’s unmistakable,” in the field of myeloproliferative neoplasms.

Mayra Andujar Delgado does not shy away from discussing her myelofibrosis diagnosis. In fact, the survivor becomes empowered by sharing her knowledge with others.

Jessica Kuhns, a patient living with a myeloproliferative neoplasm, makes it a point to ensure she can understand what doctors are telling her, so that she can take that knowledge and tell other people.

CURE® celebrated the work of eight individuals who go above and beyond to better the lives of people living with myeloproliferative neoplasms, a group of blood cancers.

A cancer caregiver recommends that other caregivers become well-versed in their loved one’s disease.

When Jeff Bushnell was contacted by a patient with an MPN who lived in the Philippines, he realized how his advocacy work was impacting patients around the globe.

An expert from the Tisch Cancer Institute discusses how he learns from patients and their caregivers, and how their insight has helped lead advancements in the treatment of myeloproliferative neoplasms, a group of rare blood cancers.

Kerry Fraser, a survivor of a myeloproliferative neoplasm and retired NHL referee, explained how he came to be diagnosed, and his hopes for the future of the group of rare blood cancers.

Social support and maintaining a positive attitude are crucial when facing a diagnosis of a myeloproliferative neoplasm, according to a caregiver and health care provider.

Dr. John Mascarenhas discusses the progress of the research around myeloproliferative neoplasms , as well as what more efforts are still needed.

Watch the entire MPN Heroes® Recognition Program here!

CURE®’s ninth annual MPN Heroes Program recognized the heroes who go above and beyond to support patients with the disease.

Five patient advocates, two oncologists and one caregiver were honored during CURE®’s eighth annual MPN Heroes Program.