Cholangiocarcinoma Foundation | Advocacy Groups

While the FDA approval of Truseltiq for FGFR2-positive cholangiocarcinoma was withdrawn, there are still other viable treatment options, an expert said.

Keytruda plus chemotherapy for patients with locally advanced biliary tract cancer helped increase survival for up to two more years, an expert told CURE®.

Although she has always been driven to excel, Karen Driskill's, M.S., RN, purpose became more focused after her mother-in-law passed away from intrahepatic cholangiocarcinoma in 2010.

Despite several FDA drug approvals over the past few years in the cholangiocarcinoma space, many patients are ineligible for these treatments as a first option, signaling a significant unmet need.

Mark R. Clements awards bestowed to three individuals at annual conference, Feb. 23-25th.

On behalf of patients and families impacted by cholangiocarcinoma (bile duct cancer), the Cholangiocarcinoma Foundation congratulates AstraZeneca and its positive results from the TOPAZ-1 Phase III trial.

The Utah-based organization was recently awarded a credential for volunteer management by the Utah Nonprofit Association.

Global day of giving takes place this year on November 30th.

Cholangiocarcinoma Foundation volunteer Lourdes Rocha leads the Veterans Program and shares her experience filing claims with the VA in a recorded webinar.

While the two men have never met, they have both chosen to join TeamCCF and run marathons while fundraising to benefit the Cholangiocarcinoma Foundation and to show their love to their wives, Mandy Ostrom and Mary O’Meara.

Cholangiocarcinoma Foundation launches New Career and Scientific Mentoring Programs by matching mentees and mentors within the ICRN and ENS-CCA networks.

Foundation offers free care kits to newly diagnosed cholangiocarcinoma patients and caregivers residing in the U.S.

Nonprofit theater company expected to earmark a portion of its proceeds from its Off-Broadway run of ‘Cat on a Hot Tin Roof’ to help with research and advocacy for bile duct cancer.

CCF Bidding for the Cure, in partnership with Qtego, features 65 items up for bid to help raise $150,000 for the Foundation’s 15-year anniversary celebration.

Newly Diagnosed/New to CCF program gives cholangiocarcinoma patients and caregivers information, resources and support to navigate cancer diagnosis

Stacie C. Lindsey is being recognized for her patient advocacy, alignment of research efforts and collaboration among the cancer community.

While Shaun was not able to take advantage of research and treatment options, his family's wish is that other families will reap the benefits of their donation and know that they are never alone.

The week-long, virtual fundraiser had more than 550 participants from 30 states and 12 countries.

Dave Fleischer’s 15,000-mile journey turned out to be more impactful than he anticipated. He traveled nationwide to spread awareness about cholangiocarcinoma, genetic testing and getting second opinions.

Could paradigm shifts in cancer research help find a cure for cholangiocarcinoma? Experts discuss.

Through community outreach, the Cholangiocarcinoma Foundation aims to increase tumor profiling and clinical trial participation.

The Cholangiocarcinoma Foundation has won a grant from Bayer to create a website and outreach to patients and doctors to let them know that all patients with the disease need to have their tumors sequenced, because there are existing medicines and clinical trials that may help patients with actionable mutations more than the standard of care.

Targeted drugs and immunotherapies are still on the horizon for people with cholangiocarcinoma, or bile duct cancer.

A lot is still unknown about the causes of cholangiocarcinoma, because this type of cancer, which affects the bile ducts inside or outside the liver, is so rare.

It's amazing what a new year can bring.

Progress in cholangiocarcinoma treatment was long stalled, but now scientists are identifying genetic drivers likely to respond to novel drugs.

New therapies are emerging for the treatment of cholangiocarcinoma, a rare type of cancer that is not often discussed.

Engaging in different mindfulness techniques can help ease both pain in stress in patients with cancer.

CURE Media Group, the nation’s leading digital and print media enterprise focused on cancer patients, has added three colon cancer organizations and one bile duct cancer foundation to its growing Advocacy Spotlight Partnership program. The new partners are Fight Colorectal Cancer, Colon Cancer Alliance, Colon Cancer Coalition and the Cholangiocarcinoma Foundation.

Research into treatments for cholangiocarcinoma is branching out, but there are still more questions than answers.