Aplastic Anemia and MDS International Foundation | Advocacy Groups

Reblozyl for anemia in patients with an MDS subset demonstrated positive effects, compared with previous treatments, according to an MDS expert.

AAMDSIF hosts Patient & Family Conferences around the United States each year.

Learn more about upcoming October events from the Aplastic Anemia and MDS International Foundation.

Learn more about upcoming events from the Aplastic Anemia and MDS International Foundation.

The Aplastic Anemia and MDS International Foundation presents webinars for patients and their loved ones at no charge to participants.

The Aplastic Anemia & MDS International Foundation presented its first Lifetime Achievement in Science Award to Mary Horowitz, MD, MS at the Foundation’s 35th Anniversary Luncheon and Awards Program on May 18, 2019. Dr. Horowitz was honored for the significant impact her work has had on stem cell transplant and hematologic malignancy practice worldwide.

The Aplastic Anemia and MDS International Foundation records educational webinars for patients.

On June 19, the webinar to be presented is “Shared Decision Making - Empowering Patients,” taught by Susan Berg, MS, LGC, from the Center for Shared Decision Making at Dartmouth – Hitchcock.

Many patients with myelodysplastic syndrome are not receiving early treatment.

Learning more about MDS will lead to better diagnostics and more personalized treatments.

APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION ANNOUNCES NEW EXECUTIVE DIRECTOR

Dr. Inga Hofman Zhang from the University of Wisconsin School of Medicine provides an update on treating MDS in children.

Dr. Naval Daver from MD Anderson Cancer Center talks about the relationship between MDS and AML and discusses new and novel treatments for both diseases.

Dr. Antonio Risitano, a hematologist from the Univeristy of Naples, discusses the most current thinking on PNH and its treatment. Questions answered include:

Dr. Eric Padrone, a hematologist from H. Lee Moffit Cancer Center, discusses current thinking on MDS/MPN overlap disorders and myelofibrosis.

Dr. Timothy Olson, a pediatric hematologist at Children's Hospital of Philadelphia, discusses the most current thinking on treatment of children with aplastic anemia. This video was recorded at the Aplastic Anemia and MDS International Foundation's Scientific Symposium in March, 2018.

Dr. Lucy Godley, University of Chicago, and Dr. Luca Malcovati, University of Pavia, discuss the highlights of their session on Genetics and Genomics of Bone Marrow Failure at the 2018 AAMDSIF International Bone Marrow Failure Disease Scientific Symposium, March 2018.

Dr. David Margolis, Medical College of Wisconsin, and Dr. Danielle Townsley, MedImmune, discuss the highlights of their session on Treatment Options for Aplastic Anemia at the 2018 AAMDSIF International Bone Marrow Failure Disease Scientific Symposium, March 2018. Topics include precision medicine, eltrombopag, and bone marrow transplantation.

Dr. Antonio Risitano, University of Naples and Dr. Regis Peffault DeLatour, Hospital de St. Louis, discuss recent research on treatment for Paroxysmal Nocturnal Hemoglobinuria (PNH) at the 2018 AAMDSIF International Bone Marrow Failure Disease Scientific Symposium, March 2018.

Dr. Timothy Graubert, Massachusetts General Hospital and Dr. Stephanie Halene, Yale University School of Medicine discuss the highlights of their session on the Biology of Myelodysplastic Syndromes (MDS) and Secondary Acute Myeloid Leukemia (AML) at the 2018 AAMDSIF International Bone Marrow Failure Disease Scientific Symposium, March 2018.

Dr. Toyosi Odenike, University of Chicago and Dr. Eric Padron, H. Lee Moffitt Cancer Center, discuss the highlights of their session on Non-Transplant Treatments for Myelodysplastic Syndromes (MDS) and Secondary Acute Myeloid Leukemia (AML) at the 2018 AAMDSIF International Bone Marrow Failure Disease Scientific Symposium, March 2018.