Video
Author(s):
Patricia K. Koenig, patient advocate and 2016 MPN Hero, discusses living with polycythemia vera (PV).
Patricia K. Koenig, patient advocate and 2016 MPN Hero, discusses living with polycythemia vera (PV).
Back when Koenig was a teen in the late 1950s, both patients and health care professionals alike knew very little about MPNs, and Koenig was misdiagnosed with having too much blood. A few decades later, she visited an oncologist and was diagnosed with PV.
Since then, Koenig did not let her disease get in the way of her family life, and she advises other patients to do the same.