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People with cancer and their families need assistance coping with the emotional and practical aspects of the disease. Those providing Spanish-language materials are marked with S.


General Cancer Information and Support

American Cancer Society (ACS)
800-ACS-2345 (800-227-2345)
www.cancer.org


A voluntary organization that offers a variety of services to patients and their families. The ACS also supports research‚ provides printed materials, and conducts educational programs. S



American Cancer Society Cancer Action Network Inc.

www.acscan.org

ACS CAN is dedicated to eliminating cancer as a major public health problem through voter education and issue campaigns aimed at influencing candidates and lawmakers to support laws and policies that will help people fight cancer.



American Institute for Cancer Research (AICR)

800-843-8114
www.aicr.org

P
rovides information about cancer prevention‚ particularly through diet and nutrition. They offer a toll-free nutrition hotline‚ pen pal support network‚ and funding of research grants. S



American Society of Clinical Oncology (ASCO)

703-299-0150
www.asco.org

Contains more than 40‚000 pages of information‚ including: cancer resources on the Internet‚ finding an oncologist‚ and up-to-date information about cancer policy issues.



American Society for Therapeutic Radiology and Oncology

800-962-7876
www.astro.org


ASTRO provides up-to-date cancer research, brochures and videos to patients and patient advocates, and has a directory where patients can locate radiation oncologists in their area. A new Web site, www.rtanswers.org includes disease-specific information on cancers commonly treated with radiation, descriptions of the radiation treatment team, explanations of external beam radiation therapy and brachytherapy, clinical trials information, and details on side effects.



Anderson Network

800-345-6324
www.mdanderson.org/andersonnetwork

Along with providing educational forums and a quarterly newsletter, the Anderson Network offers a patient-matching program and support for caregivers.


The Angiogenesis Foundation

866-54-ANGIO (26446)

www.angio.org

Provides patients with information on angiogenesis, antiangiogenic treatments and clinical trials. Their mission is to help bring about new treatment for patients based on medicines that control blood vessel growth.


Asian and Pacific Islander Cancer Education Materials (APICEM)

www.cancer.org/apicem

A searchable online database of Asian language cancer materials. Co-sponsored by The Asian American Network for Cancer Awareness, Research and Training (AANCART) and the American Cancer Society (ACS), the program is designed to help Asians and Pacific Islanders with limited English-speaking abilities gain access to information on how to reduce their risks of cancer.


Association of Cancer Online Resources
www.acor.org

Provides resources for cancer patients wanting to find others with similar cancers. Also has information about most kinds of cancer.



Bloch Cancer Hotline

800-433-0464
www.blochcancer.org

Matches newly diagnosed cancer patients with trained, home-based volunteers who have been treated for the same type of cancer. Information at hotline@hrblock.com. S



Cancer411.org

877-226-2741
www.cancer411.org

Provides database on clinical trials that lists all ongoing cancer trials. Also offers news articles and other patient resources.


Cancer and Careers

www.cancerandcareers.org

Provides a free workbook, educational resources, support and information for both cancer patients and survivors, as well as coworkers, managers, CEOs and human resources personnel about cancer patients and survivors working through their treatment and returning to work. S



CancerCare‚ Inc.

800-813-HOPE (800-813-4673 )
www.cancercare.org

A national nonprofit agency that offers free support‚ information‚ financial assistance‚ and practical help to people with cancer and their loved ones. Services are available in person‚ over the phone‚ and through the agency’s website. S


Cancer Control PLANET (Plan, Link, Act, Network with Evidence-based Tools)
cancercontrolplanet.cancer.gov

Developed as a joint effort between the National Cancer Institute and the American Cancer Society, among others, this site offers new tools for cancer control planning, implementation, and evaluation.


Cancer Hope Network
877-HOPENET (877-467-3638)
www.cancerhopenetwork.org

The Cancer Hope Network provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.



Cancer Information and Counseling Line (CICL)
800-525-3777
www.amc.org

A free service provided by AMC Cancer Research Center, professional counselors provide up-to-date medical information‚ emotional support through short-term counseling‚ and resource referrals to callers nationwide (8:30 a.m. - 5 p.m. MST).



Cancervive

800-486-2873
www.cancervive.org

Helps cancer survivors overcome the challenges of “life after cancer.” In addition to support groups‚ they provide educational materials‚ insurance information and assistance and advocacy.



CANCER101
www.cancer101.org

Provides newly diagnosed patients with organizational tools and planners.


CaringBridge

www.caringbridge.org

651-452-7940

A free Internet service that provides personalized web pages to help keep friends and family informed of life events. It also allows visitors to post encouraging messages and support on individualized password-protected websites.


The Center for Cancer Support & Education

www.centerforcancer.org

781-648-0312

Empowers and supports people touched by cancer, their caregivers and loved ones, by offering resources to enhance life as they move forward.



The C.H.A.I.N Fund
www.thechainfund.com

Assists cancer patients while they are out of work.


ChemoCare.com
www.chemocare.com
ChemoCare.com is a web resource developed by cancer survivor/figure skater Scott Hamilton in conjunction with the Cleveland Clinic. Provides the latest information about chemotherapy to patients, their families, friends and caregivers. It is designed to alleviate patient concerns about chemotherapy and outline everything they need to know in the following sections: What is Chemotherapy?; Chemotherapy Drugs; Managing Side Effects; Eating Well During Chemotherapy; and Before and After Chemo.


Coalition of National Cancer Cooperative Groups

www.CancerTrialsHelp.org

This site contains a search engine to find cancer clinical trials closest to your home, comprehensive self-study guide, patient discussion forum and helpful information for patients and caregivers.





Exceptional Cancer Patients

814-337-8192
www.ecap-online.org

Provides emotional support and education for people living with cancer and other life-threatening illnesses.


Fighting Chance
www.fightingchance.org


A network of individuals who have been touched by cancer who can offer support and understanding. Offers Coping with Cancer on the East End: A Practical Resource Guide for free.



Fertile Hope

888-994-4673  
www.fertilehope.org

A nonprofit organization dedicated to helping cancer patients with fertility issues.



FindCancerExperts

www.findcancerexperts.com

A referral source for those who want a second opinion on a biopsy diagnosis of cancer.



Gilda’s Club‚ Inc.

888-GILDA-4U (888-445-3248)
www.gildasclub.org

Provides social and emotional support to cancer patients‚ their families‚ and friends. Lectures‚ workshops‚ networking groups‚ special events‚ and a children’s program are available. Open in 14 cities.


Group Loop

888-793-WELL (9355)

www.grouploop.org

Group Loop is a program by The Wellness Community that provides online support for teens with cancer and their parents.



International Cancer Alliance (ICA)

800-ICARE-61 (800-422-7361)
www.icare.org

Provides a free Cancer Therapy Review‚ which includes information on a specific type of cancer (description and staging‚ treatment‚ diagnostic tests and clinical trials). Cancer Breakthroughs report is sent quarterly.


Lance Armstrong Foundation

512-236-8820

www.livestrong.org

Helps people with cancer and their loved ones live strong through advocacy, education, public health and research, as well as the LIVESTRONG Resource for Cancer Survivors.


Lifeline Air Ambulance, Inc.

800-492-5433

Lifeline Air Ambulance provides worldwide emergency and routine air ambulance services.


Lotsa Helping Hands

www.lotsahelpinghands.com

Provides a simple way for friends, family, colleagues and neighbors to pitch in with meals delivery, rides and other tasks necessary for life to run smoothly during a crisis. It uses a free easy-to-use, private group calendar, specifically designed for organizing helpers.



Mary-Helen Mautner Project for Lesbians with Cancer (MHMPLC)

202-332-5536
www.mautnerproject.org

Provides transportation to and from treatment, legal assistance, support groups, bereavement counseling, education, and a smoking cessation program. S


MetaCancer Foundation

www.metacancer.org

info@metacancer.org

The mission of The MetaCancer Foundation is to provide online psychosocial services, resources, and inspiration for survivors and caregivers living with metastatic cancer.


National Cancer Institute (NCI)

800-4-CANCER (800-422-6237)
www.cancer.gov

bethesdatrials.cancer.gov

An excellent and comprehensive site for people wanting to know more about cancer‚ including cancer prevention‚ definitions‚ clinical trial information‚ recipes‚ links to cancer centers‚ and a whole lot more. The NCI's Center for Cancer Research also publishes a free quarterly e-newsletter, the BethesdaTrials News, designed to help community physicians stay informed of investigational approaches, including clinical trials, to treating, diagnosing and preventing cancer. S


National Coalition for Cancer Survivorship
877-622-7937
www.canceradvocacy.org

Offers support to cancer survivors and their loved ones. Provides information and resources on cancer support, advocacy and quality-of-life issues. S


National Collegiate Cancer Foundation

www.collegiatecancer.org

Provide services and support to college students who are cancer survivors. NCCF's goal is to make the life of these students, a little easier by providing the right resources and support to help them establish a "will win" attitude.


 

National Comprehensive Cancer Network (NCCN)

215-690-0300

www.nccn.org

A non-profit alliance of 20 of the world's leading cancer centers, dedicated to improving the quality and effectiveness of care provided to cancer patients. NCCN develops resources that present valuable information to the numerous stakeholders in the health care delivery system. The primary goal of all NCCN initiatives is to improve the quality, effectiveness and efficiency of oncology practice. To order patient guidelines call 888-909-NCCN (6226).


N.W. Andrology & Cryobank

www.NWCryoBank.com

Sperm donor bank which lists profiles of donors and samples for infertility treatment.


OncoLink

www.oncolink.com

Resources for patients, families and health care workers that is written by doctors, nurses, other health professionals and survivors. 



Cancer.Net (formerly People Living With Cancer)

703-797-1914
www.cancer.net/patient/About+Us

Links all ASCO information and materials in addition to giving other communication access to people with all kinds of cancer. S



Planet Cancer

www.planetcancer.org

Website for young adults with cancer. A place to share insights, explore fears, or laugh with others.



Pine Street Foundation

415-455-5878
www.pinestreetfoundation.org

Website that provides information on evidence-based research on integrative care. Publishes a quarterly newsletter called Avenues.




Pregnant with Cancer Network

800-743-4471
www.pregnantwithcancer.org

Connects women who have been diagnosed with cancer during preganancy with other women who have been through a similar situation.




R. A. Bloch Cancer Foundation‚ Inc.

800-433-0464
www.blochcancer.org

The foundation matches newly diagnosed cancer patients with trained‚ home-based volunteers who have been treated for the same type of cancer. Informational materials‚ and a list of institutions that offer second opinions also available.


RTSupportDoc.com

www.RTSupportDoc.com

This website is dedicated to helping people undergoing radiation therapy, where you'll learn more about cancer, radiation therapy and can sign up for a monthy newsletter.


I'm Too Young For This!

www.ImTooYoungForThis.org
877-735-4673

I'm Too Young For This is a global support community for young adults affected by cancer who get busy living and rock on. We use music to make it hip to be a survivor and talk about stupid cancer by providing 'one-stop' access to hard to find resources, peer support and social networks.


Strength for Caring
www.strengthforcaring.com

The first national program for cancer caregivers to address both the physical and psychosocial health needs of the patient and caregiver. Free workshops which are facilitated by trained nurses and social workers are held at health care facilities and advocacy organizations across the United States. The website includes caregiving tips and resources, information about cancer side effects, caregiving training videos and an updated listing of Strength for Caring programs in local communities.


Team Survivor
www.teamsurvivor.org

Team Survivor provides free exercise and health education programs for women with a past or present diagnosis of cancer.  Our fun and supportive programs offer women the opportunity to reclaim their fitness, gain a sense of accomplishment, build a social support system and achieve renewed comfort with their bodies and their health. Our programs are open to women of all ages and fitness levels, in all stages of cancer treatment and recovery.  


There With Care

303-447-CARE (2273)

There With Care is a non-profit organization that provides a range of services for families facing critical illness in order to ease the burden of life's day-to-day obligations during a medical crisis.


Ulman Cancer Fund for Young Adults

888-393-FUND (3863)

www.ulmanfund.org

Provides support programs, education and resources to young adults, and their families and friends, who are affected by cancer and to promote awareness and prevention of cancer.  



Vital Options and “The Group Room”

Cancer Radio Talk Show
800-GRP-ROOM (800-477-7666)
www.vitaloptions.org

Sponsors a weekly syndicated call-in cancer radio talk show called “The Group Room.” Listeners can participate in the show during its broadcast every Sunday from 4 p.m.-6 p.m.‚ EST. A live web simulcast available on the website.  



The Wellness Community

888-793-WELL (888-793-9355)
www.thewellnesscommunity.org

Provides free psychological and emotional support to cancer patients and their families. They offer support groups on stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events.


Women's Cancer Network (WCN)

www.wcn.org

The WCN is an interactive web site dedicated to informing women around the world about gynecologic cancer. Their goal is to assist women who have developed cancer, as well as their families, to understand more about the disease, learn about treatment options, and gain access to new or experimental therapies. WCN provides news updates, a risk assessment survey, a doctor finder tool, information on various cancers affecting women and more.


Childhood Cancer


Bear Necessities Pediatric Cancer Foundation

312-836-2327

Bear Necessities Pediatric Cancer Foundation is a national organization whose mission is to provide hope and support to those who are touched by pediatric cancer. It provides research funding, family support programs and educational pamphlets.


Cancer Warriors, Inc.
www.cancerwarriors.org

The mission of Cancer Warriors, Inc. is to encourage and support children, siblings and caregivers during treatment for childhood cancer. This organization raises funds for childhood cancer research while also promoting awareness and education about the devastating diagnosis of childhood cancer.


CancerCare for Kids
800-813-HOPE (800-813-4673 )
www.cancercareforkids.org

Cancer Care for Kids helps families throughout the United States through its online and telephone support groups, telephone education workshops and through the information available on its website. Counseling and educational programs are offered at Cancer Care locations in New York City, New Jersey, Long Island and Connecticut.


Candlelighters Childhood Cancer Foundation (CCCF)
800-366-CCCF (800-366-2223)
www.candlelighters.org

A nonprofit organization that provides information‚ peer support‚ and advocacy. A financial aid list has organizations to which eligible families may apply for assistance.


Children’s Brain Tumor Foundation (CBTF)
866-228-4673
www.cbtf.org

Comprehensive site offering educational information, tips for hospital stays and going home, school issues, summer camps and more.


Children's Cause for Cancer Advocacy (CCCA)

301-562-2765

www.childrenscause.org

CCCA works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors.


Children's Oncology Camping Association International (C.O.C.A)

515-491-4999

www.coca-intl.org

C.O.C.A. International consists of more than 65 member camps in the U.S. as well as several camps outside of the U.S. such as Canada, Australia, New Zealand, and Europe. The goal is to enhance the lives of children with cancer and to have a forum for for member camps to share their experiences and ideas.


Curing Kids' Cancer Inc.
866-933-CURE (2873)
www.curingkidscancer.org

At the end of a sports season, team parents typically chip in money for a coach's gift. Instead, donate those funds to Coaches Curing Kids Cancer to help support pediatric cancer research. This is a wonderful new way for children to help other children while honoring their coaches.


CureSearch

800-458-6223

www.curesearch.org

A collaboration of the largest childhood cancer research organization, the Children's Oncology Group and the National Childhood Cancer Foundation. The organization supports research conducted by a network of institutions on the cancers of infants, children, and young adults. S


Eagle Mount

www.eaglemount.org

Eagle Mount offers a therapeutic recreation program, which includes golf, swimming, skiing and other activities, including camps for children with cancer.


Hope Street Kids
800-227-2732
www.hopestreetkids.org

Hope Street Kids' mission is to eliminate childhood cancer through research, advocacy and education. The organization was founded in 1999 by Congresswoman Deborah Pryce and Randy Walker after they lost their 9-year-old daughter, Caroline, to neuroblastoma.



Kids Konnected
800-899-2866
www.kidskonnected.org

Offers a variety of support services free to children, ages 3-18, who have a parent with cancer or who have lost a parent to cancer.


Pediatric Brain Tumor Foundation (PBTF)

800-253-6530

www.pbtfus.org

The mission of the PBTF is to increase public awareness, aid in early detection and treatment, provide educational and emotional support to patients and families and find the cause and cure of pediatric brain tumors by supporting research.


Starlight Starbright Children's Foundation

310-479-1212

www.starlight.org

The foundation is dedicated to improving the quality of life of seriously ill children by providing educational and entertaining family activities and creating programs that inspire seriously ill children, helping them cope with a prolonged illness.


Wonders & Worries

512-329-5757

www.wondersandworries.org

Provides therapeutic programs for children and their families coping with chronic or life-threatening illness. S


The Childhood Brain Tumor Foundation

877-217-4166

Provides informational materials on childhood brain tumors including news articles, upcoming educational events, webcasts and presentations, newsletters and a resource list.


The National Children's Cancer Society

314-241-1600

www.children-cancer.com

The mission of the National Children's Cancer Society is to improve the quality of life for children with cancer and their families by providing financial and in-kind assistance, advocacy, support services and education.



Complementary Therapies

Annie Appleseed Project

www.annieappleseedproject.org

A nonprofit corporation that provides information, education, advocacy and awareness for people with cancer, family and friends interested in complementary and alternative medicine (CAM) and natural therapies from the patient perspective.


About Herbs, Botanicals & Other Products
www.mskcc.org/mskcc/html/11570.cfm

Web site led by an oncology-trained pharmacist that provides information about herbs and other products, including a clinical summary for each agent and details about adverse side effects, interactions and potential benefits or problems.


Center for Mind-Body Medicine
202-966-7338
www.cmbm.org


Combines modern science with ancient healing. Addresses the mental, emotional, social, physical and spiritual sides of health and illness.



National Center for Complementary and Alternative Medicine (NCCAM)

888-644-6226
www.nccam.nih.gov

Provides the latest news, research, events and clinical trials in complementary medicine.


Smith Farm Center for Healing and the Arts

202-483-8600

www.SmithFarm.com

Provides free and financially assisted retreats, workshops, support groups and nutrition programs for adults living with cancer, their caregivers and the healthcare professionals who serve them.


Drug and Medication Assistance

National Council on the Aging
www.benefitscheckup.org

Finds programs that may pay the cost of prescriptions and healthcare services for people age 55 and older.



NeedyMeds and Pediatrics for Parents

www.needymeds.com

Information on patient-assistance programs designed to help those who can’t afford their medicines.


Pharmaceutical Research and Manufacturers of America (PhRMA)
202-835-3400
www.phrma.org

www.innovation.org

Directory of patient-assistance programs offered by pharmaceutical companies.


Hospice & Palliative Care

Center to Advance Palliative Care (CAPC)

www.getpalliativecare.org

Valuable information for patients and families coping with serious, complex illness including a palliative care provider directory, a definition and detailed description of what palliative care is, direct links to palliative care-related organizations and more.


Hospice Education Institute
800-331-1620
www.hospiceworld.org

Helps patients and their families find support services in their communities. They offer information about hospice and palliative care and can refer cancer patients and their families to local hospice and palliative care programs.


National Association for Home Care
202-547-7424
www.nahc.org


Provides information on how to choose home care and hospice care providers.


National Hospice and Palliative Care Organization (NHPCO)
800-658-8898
www.caringinfo.org

The NHPCO is an association of programs that provide hospice and palliative care. S


Pain

Alliance of State Pain Initiatives
608-265-4013
http://aspi.wisc.edu


Provides leadership and advocacy for state and regional pain initiatives.



American Pain Foundation

888-615-7246
www.painfoundation.org

Features a Pain Action Guide and offers informational material, support and advocacy.



Partners Against Pain

www.partnersagainstpain.com

Includes news updates, pain control guides for patients, support groups, resources and additional information for healthcare professionals.


Patient Advocacy



Cancer Legal Resource Center
213-THE-CLRC (743-2572) www.disabilityrightslegalcenter.org/about/cancerlegalresource.cfm


Provides information on cancer-related legal issues for cancer survivors, their
families, and others impacted by the disease.


Legal Resource Guide for Cancer Patients

The Guide covers legal issues concerning privacy, informed consent, insurance, clinical trials, employment law, disability, liability, guardianship, estate planning, and end of life decisions. This Guide is intended to be an informative resource upon which cancer patients and their family members and friends can rely to answer legal questions.


National Asian Women’s Health Organization (NAWHO)
415-989-9747

www.nawho.org

NAWHO is working to improve the health status of Asian women and families through research‚ education‚ leadership and public policy programs. Resources for Asian women in English‚ Cantonese‚ Laotian‚ Vietnamese and Korean.



Patient Advocate Foundation (PAF)

800-532-5274
www.patientadvocate.org

The PAF provides education‚ legal counseling‚ and referrals to cancer patients and survivors concerning managed care‚ insurance‚ financial issues‚ job discrimination‚ and debt crisis matters.


Survivorship Clinics

Abramson Cancer Center of the University of Pennsylvania

800-789-7366

www.penncancer.org


Dana-Farber Cancer Institute
617-632-5100
www.dana-farber.org/pat/surviving/adult-onset


Fred Hutchinson Cancer Research Center
206-667-2814
www.fhcrc.org/patient/support/survivorship


Memorial Sloan-Kettering Cancer Center
212-639-2581
www.mskcc.org/mskcc/html/64918.cfm


Ohio State University Comprehensive Cancer Center

800-293-5066

www.jamesline.com


UCLA’s Jonsson Comprehensive Cancer Center
310-825-9781
www.cancer.ucla.edu


University of Colorado Cancer Center
303-239-3397

www.uccc.info


Travel and Housing

Air Charity Network
800-446-1231
www.angelflightamerica.org

Network of 5,000 pilots who provide transportation to patients traveling for treatment.


Corporate Angel Network, Inc.
866-328-1313
www.corpangelnetwork.org


CAN finds free air transportation (on corporate planes) for cancer patients who need medical treatment. Patients must be ambulatory.


Joe's House

877-JOES HOUSE (563-7468).

www.joeshouse.org

A nationwide housing guide for patients and families when they travel for treatment. Directories of various places to stay near cancer treatment centers is available via the website or toll-free number.


National Association of Hospital Hospitality Houses
800-542-9730
www.nahhh.org


Provides accommodations for families and patients receiving medical treatment away from home. Rates typically range from $5-$15 per day (sometimes free).


National Patient Travel Helpline
800-296-1217

www.patienttravel.org

Locates the best available travel options for patients. Help available 24 hours.


Bladder

Bladder Cancer Webcafé
www.blcwebcafe.org

Dedicated to the latest in bladder cancer treatments, clinical trials and alternatives. Includes e-mail support.


Bladder Cancer Advocacy Network

888-901-BCAN (888-901-2226)
www.bcan.org

BCAN, the Bladder Cancer Advocacy Network, is the first national advocacy organization dedicated to improving public awareness of bladder cancer, and increasing research directed towards the diagnosis, treatment and cure of the disease. Founded in May 2005, BCAN is a cooperative effort among bladder cancer survivors, their families and caregivers, and the medical community.


Brain Tumors

American Brain Tumor Association
800-886-2282
www.abta.org


Offers free publications, educational programs, support group lists, physician list, pen pal program and social service consultations by telephone.


BrainSurgery

health.groups.yahoo.com/group/Brainsurgery

Website and mail list that provide a place for patients with brain tumors and related conditions to communicate. The site also helps to raise awareness, provides educational resources and raises funds for research.


The Brain Tumor Foundation

www.braintumorfoundation.org

Raises awareness about the importance of early detection and offers peer support groups, a worldwide referral network for treatment, conferences, seminars and outreach events.


The Brain Tumor Society
800-770 8287
www.tbts.org


Provides supportive services, educational resources, news, events and clinical trial information for patients, families and healthcare providers.



National Brain Tumor Foundation (NBTF)
800-934-CURE (800-934-2873)
www.braintumor.org

Provides patients and their families with information on how to cope with their brain tumors. S


Bone Marrow Transplants and Donors

Blood & Marrow Transplant Resources

414-352-3219

www.bmtresources.org

Provides resources, educational material and support for those having or considering a bone marrow or stem cell transplant.


National Bone Marrow Transplant Link
800-LINK-BMT (800-546-5268)
www.nbmtlink.org

Operates a 24-hour‚ toll-free number and provides peer support to bone marrow transplant (BMT) patients and their families. It serves as an information center for prospective BMT patients as well as a resource for health professionals. S



National Marrow Donor Program® (NMDP)

800-MARROW-2 (800-627-7692)
www.marrow.org

Funded by the federal government to improve the effectiveness of the search for bone marrow donors. It keeps a registry of potential bone marrow donors and provides free information on bone marrow transplantation. It also provides patient advocacy aid by helping patients and families with information on insurance and other financial matters, identifying groups and resources for housing and transportation needs and free patient education materials.


Breast Cancer

1in9:  The Long Island Breast Cancer Action Coalition

516-374-3190

www.1in9.org

Hewlett House is a project of 1 in 9. It is a comprehensive, non-residential, independent, community learning resource center for cancer concerns, providing emotional and psychosocial support, outreach, and education and information services to people with cancer, their families and friends. Support Groups and Classes are offered at no cost. 

AndreCenter

303-388-2441

www.andrecenter.org

Its primary goal is to offer credible information on treatment options, coaching help with decisions, assistance with navigating the healthcare system and connections to needed resources. We also act as a resource to referring physicians and the treatment team by supporting effective communication between providers.


Breastcancer.org
www.breastcancer.org

A nonprofit website dedicated to providing the most reliable and complete information available.


Circus of Cancer
www.circusofcancer.org

Provides ideas for how friends and family can show concern and encouragement for someone dealing with breast cancer.



FORCE: Facing Our Risk of Cancer Empowered
866-824-RISK (7475)
www.facingourrisk.org

Provides support, information, and resources for women at high risk for breast and ovarian cancer.


Health and Human Services
877-696-6775
www.hhs.gov/breastcancer

Provides educational information on breast cancer.



HER2Support.org
760-602-9178
www.her2support.org

Resource for women who have been diagnosed with HER2-positive breast cancer.


Inflammatory Breast Cancer Research Foundation
877-786-7422
www.ibcresearch.org

Provides education, background, active participation in research and links to clinical trial information.


JACOB International (Jews Against Cancer of the Breast)

561-394-9100

www.jacobintl.org

Provides awareness of the high risk of hereditary breast and ovarian cancer among Ashkenazi Jewish women and the benefits of genetic testing. The site offers information about BRCA 1 and 2 mutations and genetic testing, medical and spiritual resources and tools to assess one’s risk through their family medical history.


Living Beyond Breast Cancer
610-645-4567
www.lbbc.org

Provides educational materials, a calendar of events, a quarterly newsletter, a
Young Survivors Network, and a toll-free helpline at 800-753-5222.


Living With It
www.livingwithit.org

Designed as a support program for women with breast cancer and provides education, diet and exercise tips, personal stories, financial advice and more.


Men Against Breast Cancer
866-547-6222
www.menagainstbreastcancer.org

Targets and mobilizes men to be active participants in the fight to eradicate breast cancer and to provide support to men whose families are impacted by breast cancer.


Pink-Link

310-995-5204

www.pink-link.org

Includes an online searchable database of women affected by breast cancer, as well as friends and co-survivors; a tribute page, educational resources, a forum and a personal journal you can keep private or show with other members.


REACH Global

www.reachglobal.org

561-394-9100

Provides awareness of the risk of hereditary breast and ovarian cancer among women and the benefits of genetic testing. The site offers information about BRCA 1 and 2 mutations and genetic testing, medical and spiritual resources and tools to assess one’s risk through their family medical history.


Sharsheret
866-474-2774
www.sharsheret.org

Connects young Jewish women recently diagnosed with breast cancer with volunteers.


Sisters Network‚ Inc.
866-781-1808
www.sistersnetworkinc.org

Seeks to increase local and national attention to the impact that breast cancer has in the African-American community. All chapters are run by breast cancer survivors and receive volunteer assistance.


Susan G. Komen Breast Cancer Foundation
800-I’M AWARE (800-462-9273)
www.komen.org


A toll-free breast cancer helpline (1-800-I’M AWARE®) is answered by trained volunteers whose lives have been personally touched by breast cancer. Breast health and breast cancer materials are available.S



Y-ME National Breast Cancer Organization‚ Inc.

800-221-2141 (English)
800-986-9505 (Spanish)

www.y-me.org

Y-ME serves women with breast cancer and their families through their national hotline (available 24 hours a day)‚ open-door groups‚ early detection workshops‚ and support programs. S


Young Survival Coalition

877-972-1011

www.youngsurvival.org

The only international network of breast cancer survivors and supporters dedicated to the  issues of women under 40 who are diagnosed with breast cancer.


Carcinoid Cancer

Carcinoid Cancer Foundation, Inc.
888-722-3132
www.carcinoid.org

Provides education, support groups, transcripts of lectures and nutrition resources.


Caring for Carcinoid Foundation

www.caringforcarcinoid.org

(857) 222-5492

Dedicated to finding a cure for carcinoid cancer by funding leading scientists to unlock the genetic causes of carcinoid and develop novel, targeted therapies.


Colorectal Cancer 

C3: Colorectal Cancer Coalition

202-244-2906

www.c-three.org

A national organization whose mission is to eliminate suffering and death due to colorectal cancer. C3 pushes for research to improve screening, diagnosis and treatment of colorectal cancer; for policy decisions that make the most effective colorectal cancer prevention and treatment available to all; and for increased awareness that colorectal cancer is preventable, treatable and beatable.


Colorectal CareLine

Sponsored by Patient Advocate Foundation and Amgen Oncology

866-657-8634

www.colorectalcareline.org

National toll-free telephone hotline designed to offer assistance to colorectal cancer patients and healthcare providers seeking educational resources, direct assistance with access to care issues and/or financial aid for select patient needs, including lodging, transportation, childcare and other expenses associated with out-of-town treatment.


Colon Cancer Alliance
877-422-2030
www.ccalliance.org

Offers patient support, a resource center, news, research, advocacy and events.



United Ostomy Association‚ Inc
.
800-826-0826
www.uoa.org

Helps ostomy patients through mutual aid and emotional support. It provides information to patients and the public and sends volunteers to visit with new ostomy patients.

 


Esophageal Cancer

Esophageal Cancer Awareness Association
www.ECaware.org

Esophageal Cancer Awareness Association, Inc. is an organization promoting worldwide understanding and support for esophageal cancer patients and caregivers.


GIST

GIST Support International
www.gistsupport.org

This organization is dedicated to the support of GIST patients, families and friends and the ongoing research required to treat and cure gastrointestinal stromal tumors.


The Life Raft Group

www.liferaftgroup.org

The Life Raft Group is a non-profit, Internet-based organization providing support through education and research to patients with gastrointestinal stromal tumors.


Gynecological Cancers

Gynecologic Cancer Foundation

www.thegcf.org

Encourages public awareness of gynecologic cancer prevention, early diagnosis and proper treatment as well as supports research and training related to gynecologic cancers such as ovarian, uterine, vaginal, vulvar, endometrial, fallopian tube and cervical cancers.


Sandy Rollman Ovarian Cancer Foundation

877-730-1100

www.sandyovarian.org


A non-profit organization that is committed to finding an early detection test for ovarian cancer, to funding improved treatments for the disease, and to developing educational programs to educate the public and physicians about ovarian cancer.


Vulva Awareness Cancer Organization

www.vaco.co.uk

carolvaco2003@yahoo.co.uk

Organization provides a community listserv, educational resources, support and assistance for women who have been through vulval cancer, radical vulvectomy and groin node dissecton, VIN, vaginal cancer, Pagets disease of the vulva, HPV and vulval surgery.


Head and Neck Cancer

Support for People With Oral and Head and Neck Cancer
800-377-0928
www.spohnc.org


Provides education, support, a “Survivor to Survivor” network, clinical trials and a newsletter.


The Yul Brynner Head and Neck Cancer Foundation
843-792-6624
www.headandneck.org

Provides resources, education and support for patients with head and neck cancers. Includes a discussion forum and information on clinical trials with study listings.


Kidney Cancer

Kidney Cancer Association
800-850-9132
www.kidneycancerassociation.org


Supports research‚ offers printed materials about the diagnosis and treatment of kidney cancer‚ sponsors support groups‚ and provides physician referral information.


Lung Cancer

 

Lung Cancer Alliance
800-298-2436
www.lungcanceralliance.org

The Lung Cancer Alliance offers programs designed to help improve the quality of life of people with lung cancer and their families. Programs include education about the disease‚ psychosocial support‚ and advocacy about issues that concern lung cancer survivors.


Lung Cancer Caring Ambassadors Program (LCCAP)

www.lungcancercap.org

770-451-4749

Provides information and encouragement for people living with lung cancer and raises lung cancer awareness.


Lung Cancer Support Community
866-392-7328

lchelp.org

Offers an online community via message boards and live chats, provides educational resources and promotes the BreatheDEEP! Campaign, which raises awareness and funds for lung cancer research.


It’s Time to Focus on Lung Cancer
877-646-5864
www.lungcancer.org

Offers education, resources, clinical trial information, support groups, teleconferences, quarterly e-newsletter, personal stories and news updates.


The LUNGevity Foundation

773-769-6060

www.lungevity.org

The LUNGevity Foundation partners with the world's foremost physicians and research scientists to fund innovative research designed to detect, treat and cure lung cancer.



Melanoma


Melanoma International Foundation
866-463-6663

www.melanomaintl.org

Educates public on prevention and early detection of melanoma, coordinates local screening and education programs and serves patients and their families by operating a toll-free patient/family hotline for those battling melanoma.  


Melanoma Patients’ Information Page
www.mpip.org

Features a community bulletin board, research links, and the latest news in melanoma.


The Melanoma Research Foundation (MRF)

800-MRF-1290

www.melanoma.org

A non-profit foundation founded and maintained by melanoma patients, their families and caregivers and friends whose mission is to promote research, education and advocacy and to find a cure for melanoma.



The Skin Cancer Foundation
800-754-6490
www.skincancer.org


Works to increase public awareness and teach people how to recognize the early signs of skin cancer. They conduct public and medical education programs.


Myelodysplastic Syndromes

Aplastic Anemia & MDS International Foundation, Inc.

800-747-2820

www.aamds.org

As the oldest and largest patient advocate and support organization for bone marrow diseases, it provides free educational brochures on various topics including managing treatment decisions, bone marrow failure disease, clinical trials and iron chelation.



Myeloma‚ Leukemia
and Lymphoma

Cutaneous Lymphoma Foundation

248-644-9014

www.clfoundation.org

An independent, non-profit patient advocacy organization dedicated to supporting patients with cutaneous lymphomas by promoting awareness and education, advancing patient care and facilitating research.


International Myeloma Foundation (IMF)
800-452-CURE (800-452-2873)
www.myeloma.org

Supports education‚ treatment‚ and research for multiple myeloma. They provide a toll-free hotline‚ seminars‚ and educational materials for patients and their families. S



The Leukemia and Lymphoma Society

800-955-4572
www.lls.org

The Leukemia & Lymphoma Society® is the world’s largest voluntary health organization dedicated to funding blood cancer research and providing education and patient services. The Society’s mission is to cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. The society provides patient financial aid for specified treatment expenses and transportation‚ family support groups‚ First Connection (a professionally supervised peer support program)‚ referrals and school re-entry materials. The Society's Information Resource Center (IRC) provides patients, families and healthcare professionals with the latest information on leukemia, lymphoma and myeloma. S



Lymphoma Research Foundation (LRF)

800-500-9976
www.lymphoma.org

LRF provides a free information helpline, up-to-date educational materials, peer support, educational programs and financial assistance for patients. S


Patients Against Lymphoma
800-500-9976
www.lymphomation.org

A non-profit foundation providing support and timely access to evidence-based information about lymphomas and related treatments. Helps patients and physicians locate clinical trials for lymphoma, and provide query tools to assist in locating published articles on outcomes, safety and mechanisms for investigational agents. Also includes a free information helpline, up-to-date educational materials, peer support, educational programs and financial assistance.


Multiple Myeloma Research Foundation (MMRF)
203-972-1250
www.multiplemyeloma.org

Supports research grants and professional and patient symposia on multiple myeloma and related blood cancers. MMRF publishes a quarterly newsletter‚ and provides referrals and information packets free of charge to patients and family members. Also includes the Multiple Myleoma Research Line in collaboration with the National Comprehensive Cancer Network (NCCN), which provides physicians access to NCCN expert faculty to answer questions on specific clinical issues related to the management of multiple myeloma at 866-528-NCCN (6226) or through e-mail at multiplemyeloma@nccn.org.



Ovarian Cancer

National Ovarian Cancer Coalition (NOCC)
888-OVARIAN (888-682-7426)
www.ovarian.org

NOCC raises awareness about ovarian cancer and promotes education about the disease. They also offer support groups‚ a database of gynecologic oncologists searchable by state and educational materials.  S



Ovarian Cancer National Alliance (OCNA)

202-331-1332
www.ovariancancer.org

Works to increase public and professional understanding of ovarian cancer and to advocate for research. The Alliance distributes materials and sponsors an annual advocacy conference for survivors and families. S


REACH Global

www.reachglobal.org

561-394-9100

Provides awareness of the risk of hereditary breast and ovarian cancer among women and the benefits of genetic testing. The site offers information about BRCA 1 and 2 mutations and genetic testing, medical and spiritual resources and tools to assess one’s risk through their family medical history.


SHARE: Self-help for Women with Breast or Ovarian Cancer
866-891-2392
www.sharecancersupport.org

Provides support groups, educational forums, wellness programs, events, newsletter, and toll-free hotline. All services provided are free. S



Pancreatic Cancer

Pancreatic Cancer Action Network (PanCAN)
877-2-PANCAN
(877-272-6226)
www.pancan.org

A nonprofit advocacy organization that educates health professionals and the general public about pancreatic cancer to increase awareness of the disease. Information about support networks‚ clinical trials‚ and reimbursement for care also available.  S


Prostate Cancer


Malecare Prostate Cancer Support
212-844-8369

www.malecare.com

A national nonprofit organization providing a multilingual website with timely news, as well as doctor- and patient-authored articles on prostate cancer. Malecare also offers in-person and online support groups, including a special group and articles specific for gay men with prostate cancer.



National Prostate Cancer Coalition