Soul
Food
Finding inner peace at a cancer retreat.
By
Jennifer M. Gangloff
It’s a cool, soggy April, and on the bluffs overlooking the
Pacific Ocean on the grounds of Commonweal, the paper-thin petals
of the wild purple irises belie their strength and determination
as they thrive amidst the stinging winds, salty air and even trampling
by free-grazing cattle.
Metaphors, too, bloom at Commonweal. It takes
less than a week for a group of eight strangers thrust together,
cancer patients all, to discover their strengths, the ability to
thrive amidst the stinging pain, salty tears and even trampling
by all the forces of life and nature and inner demons.
For many cancer patients,
Commonweal becomes a magical place. You can scramble down the cliff,
stand before the yawning Pacific, duck as the hovering turkey vultures
swoop too close for comfort, and feel as if you’re nothing but
a speck. If you wanted, you could let the anger and grief pour from your mouth
into the crashing waves, and no one would ever hear you.
And then you could clamber
back up the cliff, say hello to a passing calf, walk gently through
the Enchanted Forest, turn your face up to the rain, head inside,
shed your coat and muddy shoes, grab a warm cup of tea, sit down
to chat with the nearest human and suddenly become the world’s most important person.
You would be heard.
Commonweal is a nonprofit health and environmental research
institute a stone’s
throw from the coastal town of Bolinas, California. Founded in 1976
by Michael Lerner, PhD, Commonweal conducts programs that contribute
to human and ecosystem health. A political scientist by training,
Dr. Lerner left academia to start the institute, which added the
Commonweal Cancer Help Program (CCHP) in the mid-1980s after Dr.
Lerner’s father was diagnosed with cancer. The seven-day integrative
healing retreat for cancer patients has since inspired numerous
other cancer retreats (see sidebar).
Marian Ford was one
of eight people, including myself, who arrived as strangers in early
April to attend the retreat. “I have never before been surrounded
by such love, support, unconditional trust and active listening,” says
Ford, 40, of San Francisco, who is in treatment for metastatic breast
cancer.
We
came from different backgrounds and different cancer experiences,
and ranged in age from late 30s to late 70s. I was diagnosed with
leukemia in March 2000, and although now in remission, I am still
in treatment. During those six years, other than participating in
a clinical trial, I’d never ventured beyond
traditional medicine. But at age 39, and now also a year out from surviving life-threatening
blood clots in my lungs attributed to the leukemia, I was interested in learning
about different forms of healing—those that integrate mind and body. Others
at the retreat had more extensive experience with nontraditional medicine, including
Ford, who practices yoga and meditation, receives acupuncture and takes Chinese
herbs. We all knew Commonweal would be intense and emotional, but we also hoped
it would give us insights and tools into leading fuller, happier lives.
Liora
Soladay of Point Reyes Station, California, had also tried nontraditional
medicine before she arrived at the Commonweal retreat, including
yoga and Chinese herbs. Like Ford, she says the retreat had a profound
impact. “I had not
expected how awe-inspiring it would be, and how much it would teach me about
myself,” says Soladay, 37, who has undergone surgery, chemotherapy and
radiation since her tongue cancer diagnosis in November 2003. “In many
ways, it was a life-changing experience.”
Those are strong sentiments, not
made lightly. What is it about Commonweal that evokes such feelings,
that has the power to change lives in a just a few days?
A Supportive Envelope
Everything about CCHP seems designed with
a healing purpose. Each facet of what Dr. Lerner calls the “vital
quartet” of
healing is addressed—spiritual, psychological, physical
and nutritional.
During the day, CCHP offers an integrated program
of healing that includes yoga, group support sessions led by a
psychotherapist, therapeutic massage, meditation, deep relaxation,
symbolic learning through sandtray, writing and a gourmet vegetarian
diet. Evening discussions with participants and staff explore
choices in healing, mainstream and integrative therapies, pain
and suffering, death and dying, spirituality, sacred space and
other topics.
But be clear
about this: Commonweal isn’t a treatment center.
It doesn’t offer any medical or alternative treatment. Nor
does it push an agenda. Its goal, simply enough, is to give participants
the internal and external resources—or at least a good start—to
live a more enjoyable, fuller life side by side with cancer, no
matter how long that life is.
People seek out Commonweal for various
reasons, says Dr. Lerner, who is author of Choices in Healing: Integrating
the Best of Conventional and Complementary Approaches to Cancer.
Some participants are looking for inner peace, some want information
about treatment alternatives, and still others hope to reconcile
conflicting emotions about death and dying.
“When people come to the Cancer Help Program, one of the things they
quickly come to understand is that the staff can provide a very supportive
envelope, but that the work is theirs to do,” Dr. Lerner says. “What
people get out of Commonweal is a reflection of their own unique personality
and story, which is as individual as your fingerprint or the iris of your eye.”
For
Robert Rand of Santa Rosa, California, it was learning a different
approach to everyday life. “I was inspired to make the best
of every day, accepting the bad days and enjoying the moment because
our life is just a series of moments,” says Rand, 44, who’s
in treatment for metastatic salivary gland cancer. “Cancer
doesn’t have to hijack our lives. We don’t know what
will happen tomorrow or the next day, so we must plan for the future
but live for today.”
Nourishing Body and Mind
Commonweal, as Dr. Lerner notes, is indeed
a protective, safe envelope, emotionally and physically. It’s
nestled on a 60-acre, relatively secluded site overlooking the Pacific,
in the Point Reyes National Seashore area, a scenic hour’s
drive north of San Francisco. Commonweal’s buildings, most
of them beautifully restored, are scattered about land that used
to house an RCA and Marconi radio transmitter site. In the Pacific
House, where retreat participants stay, you can steal away to an
upstairs windowseat and hear nothing but the gentle sound of breaking
waves far below and watch as the golden orange streaks of the setting
sun fade away.
But don’t
expect a spa-like resort. “We have a pretty
simple aesthetic,” Dr. Lerner says. “A more or less
kind of Quaker aesthetic of simplicity and quiet and tasteful frugality.”
Bedrooms
in the Pacific House are small and sparsely furnished, with a bed,
a desk and an armoire. Most bathrooms are shared. There’s
no television, no radio (unless you bring your own) and no computer
access. Somehow, though, none of that matters. In fact, unplugging
is a welcome relief from the blaring disruptions of everyday life.
The
food, however, is far from Spartan. Commonweal chefs, including
Rebecca Katz, author of One Bite at a Time: Nourishing Recipes for
People with Cancer, Survivors, and Their Caregivers, create healthy,
low-fat menus that include such culinary delights as carrot-ginger
soup with cashew cream and poached coconut ginger salmon. The chefs
can accommodate many special dietary needs and are eager to sit
with you in the dining room and dish about everything from organic
shopping to sea salt to stocking a healthy pantry.
All of the staff
at the Cancer Help Program—and they outnumber
the participants by 12 to 8—are similarly helpful. But helpful
isn’t a big enough word to express what they do. They’re
genuinely caring, nurturing and interested, whether you’re
having a frank discussion about death, chatting about your dog or
tracking down information about a new clinical trial. And no one
who attends a Commonweal cancer retreat will forget program coordinator
Waz Thomas, whose deep, gentle voice dispensing words of wisdom
and breathing instructions resonates long after you’ve left. “Why
do you look at a deer in the woods with awe and wonder,” he
asked us one day, “but not yourself when you look in the mirror?”
Perhaps
because the staff members hold themselves as family—most
have been doing the retreats together for years—they’re
able to easily adopt participants into the fold.
“I felt so completely taken care of 24 hours a day,” Soladay says.
Strength in Community
Indeed, it’s the intense but protective
community that Commonweal envelopes you with that seems most healing.
The retreats are small, with only eight or nine participants at
a time. And they’re
held only six times a year, which means there’s often a waiting
list to attend. Certainly, the dynamics of such an intimate group
can shape how you experience the retreat. Seldom, though, has a
group of eight strangers not left the retreat as new friends, who
stay in touch through the years and even make the pilgrimage back
to Commonweal for periodic reunions.
“Your individual healing is greatly strengthened if a group
is able to collaborate in meeting needs together,” Dr. Lerner
says. “It generates
a very powerful sense of shared purpose and deep respect for how
different each person is and how different the needs are that brought
him or her to Commonweal.”
The healing is not always easy or
enjoyable. To get the most out of the Commonweal retreat, you may
need to venture out of your comfort zone. That may mean trying Hatha
yoga or meditation practices—albeit,
the basics—revealing raw emotions during group support sessions,
or simply openly receiving the help that’s offered. Regardless,
you won’t be judged, mocked, dismissed or ridiculed.
“It’s important to meet people at as many different levels as possible
when they often feel very stressed, very anxious, depressed and wounded by
this difficult experience of cancer,” Dr. Lerner says. “We meet
them at the physical level, with physical well-being and security and gentle
touch and relaxation, at the emotional level, with tears that need to be cried
and feelings that need to be expressed, at the mental level, with stories about
themselves that are broken and ideas about themselves and the world that no
longer work for them, and at the spiritual level, where they may find meaning
in their lives.”
New Way of Living
Most retreat participants, Dr. Lerner says, arrive
anxious, fearful and worried. And then, as with wild irises blooming
despite the harsh elements of their life—or maybe because
of that—something
magical happens during Commonweal.
“Commonweal offers a quiet, unique, intensive exposure to deep healing
practices that quite honestly are rarely available in people’s everyday
lives,” Dr. Lerner says. “Some people find that medical treatment
alone is not enough to deal with the spiritual and mental dimensions of having
cancer. And so we see this little miracle time after time of people experiencing
profound benefit.”
It was only in reflecting on his Commonweal experience afterward
that Rand realized how much he’d gained from it. “I
felt there was some big secret I might learn about living a more
meaningful life that never was revealed,” Rand says. “As
I look back, that big secret was the little things we learned, tidbits
of wisdom here and there from staff and participants alike.”
Marian
Ford says Commonweal inspired a change in the way she moves through
life. “I have a renewed, clearer sense of self and
purpose,” Ford says. “My cancer is and was truly a gift.
I have had the opportunity to ask the big questions—what does
my life mean, how do I want to live it, how do I want to make meaning
of it, what are the aspects of my life that support my vision and
what is holding me back. Thank god I got cancer. What a superficial
life I would have led if I hadn’t.”
Editor’s
Note: Robert Rand passed away in July. CURE is proud to honor his
memory.
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