| Caregivers'
Corner
By Rev. Todd Outcalt
My wife Becky was at a sales meeting in Florida when
she called with the news. I just talked to the doctor about
the breast biopsy, she said, her voice trembling. Its
not good. I have cancer.
Cancer. How could this be? Becky was too young, too active, too
fit to be diagnosed with this disease. This must be a mistake. My
wife was healthy; she ate the best foods; she exercised. And besides,
she was busy being a mother and wife. She had a promising career.
She didnt have time for this disease, and neither did I.
Cancer didnt seem like a good match for us. Becky and I were
best friends and lovers. We were parents to two wonderful children.
And after 17 years of marriage, we were just beginning to hit our
stridepaying off a mortgage, saving for our childrens
educations, attending school functions and athletic events. How
could cancer invade our lives so suddenly, so mercilessly?
A thousand miles away, my wife began to sob over the phone.
Well get through this, I said. Take it easy.
Take it easy? How? Wed been waiting for the results of the
breast biopsy for five days, thinking of it as just another procedure,
another step following on the heels of a suspicious-looking mammograma
mere precautionary measure. And there were other issues at hand.
Becky had flown to Florida two days after Sept. 11.
Everyone from the president on down had been telling us to live
our lives, to go about our business, to travel. In the aftermath
of a national tragedy, the breast biopsy loomed as little more than
another medical hoop that my wife was being asked to jump through.
The doctors had assured us that biopsies came back negative 80%
of the time. Suddenly Becky was no longer in the majority, but the
minoritythe 20% who come back positive.
What am I going to do? she sobbed. How am I going
to deal with this?
Finding Strength
As a pastor, Id helped hundreds of families deal with a multitude
of illnessesmany of them terminal. Id stood by the bedside,
offered words of comfort, held trembling hands, presided over funerals
and tragedies of every kind. Id seen heart disease, AIDS,
car crash victims, and yes, even cancer. Since Sept. 11, I had been
busy organizing prayer vigils and worship services for those who
were having difficulty managing their own pain and fear.
But nothing had prepared me to help my own wife. The news had entered
our lives like an earthquake, and I was too close to the epicenter.
Its going to be all right, I assured her, trying
desperately to believe it myself.
I cant stay here, my wife told me. I want
to come home. I love you. I need to be with you.
Come home, I said. I love you, too.
That was that. But the hard part was just beginning.
At midnight Becky arrived home in Indianapolis on the last flight
of the day. When we made eye contact, we walked toward one another
slowly, arms outstretched and aching for touch (just like some scene
from a sappy Hollywood love story), and fell into each others
arms. We hugged tightly, Beckys face pressing deeply into
my chest as she cried. I looked far off, searching for some sign
beyond the windows, hoping this strange and awkward moment might
turn out to be just a bad dream.
I didnt want to cry. I wanted to be strongfor her, for
our children, for the future. But inside my chest my heart was pounding
and I struggled for some words of faith and encouragement. It
will be all right, I kept mouthing over and over. Dont
worry.
Sharing the News
When I told my congregation, an astounding number of women, many
of them breast cancer survivors, stepped forward with words of comfort
and empathy. We received cards and letters by the basketful. People
called. Others visited. Many offered their presence to us in the
midst of our storm.
Becky set up appointments with a surgeon and a radiologist. We spent
the better part of a day sweating it out in the sterile confines
of a medical center waiting room. We were surrounded by the faces
of others who were weighed down with the same fears and uncertainties.
Some women emerged alone from examination roomsmany of them
bald, or incredibly thintheir faces slack and haggard. Some
wore scarves or wigs.
I was overcome by a deepening sadness, not only for our loss and
the growing awareness of what we were facing together, but also
for the women who were coping with their cancer, alone.
After hours of waiting, we finally spoke to the surgeona gentle
and articulate doctor, who made eye contact with us and reviewed
the various options and forms of treatment step-by-step. We talked
for an hour, the doctor answering our questions in numbing detail.
He then sent us down the hallway to speak to a plastic surgeon.
More waiting. More discussion. And by the end of the day, we were
both wiped outemotionally, intellectually, physically.
Now What?
We read a startling number of books within a span of daysperhaps
more books than I had consumed in any abbreviated period of my life,
including graduate school. Becky became an expert in the research,
philosophy, and statistics of breast cancer treatments. She was
focused on making decisions that were best for her.
All I could do was watch . . . and lend support. Sometimes I listened.
Sometimes I cursed. Sometimes I cried. I prayed, too.
Eventually she settled into a calmer state of mindvery focused,
intense, purposeful. The surgeon had given her two options to consider,
and she was determined to make the right choice. She could have
a lumpectomy followed by six weeks of radiation treatments, or opt
for a mastectomy followed by reconstructive surgery. Two choices.
But which one was best for her?
Being the man didnt help matters, either. I was equally ambiguous.
Confused. There must be another choicea solution that would
not require such drastic measures.
Some evenings we sat on the couch in silence with a pile of books
between us trying to sort the issues. Becky would ask my opinion
on mastectomy.
Yes, Id answer. If thats what you
want.
But what do you think?
I think you should do what you think is best.
But . . . .
As time went by, it was clear that, even though I had the best of
intentions and my support was unwavering, Becky felt very alone.
She was the one who had cancer, not me. She was the one who was
going to endure the pain and discomfort of surgery or therapy. It
would have to be her decision in the end. All I could do was offer
my love and strength.
Later, the surgeon confirmed my suspicions about the isolation and
loneliness women face when dealing with breast cancer. Becky asked
him which one he would choose and he told her it was her decision,
adding, Some women, like you, immerse themselves in learning
about the options. They do their homework; they learn all the medical
language and the statistics and the procedures. They know what will
be required at every step along the way and they make an informed
decision. Other women, however, cant cope with these facts.
They feel overwhelmed by knowledge. They just want to get well.
They make a decision based on other factorssuch as their family
situation, or how they believe their bodies will react to surgery
or treatment. They decide from the heart. In the end, every woman
has to make a choice based on what she knows, or what she doesnt
want to know.
Moving Forward
Becky sought a second opinionnot so much because she didnt
trust the first surgeonbut because she didnt want to
look back later with regret and ask, Why didnt I pursue
other options? More surgeons, more books, more waiting. Same
results. Same options. Same predicament.
Becky opted for a mastectomy.
After she decided, I learned a great deal about the human psyche.
For example, I learned that any decision we make in lifeparticularly
a weighty one carrying a potential life-and-death outcomeusually
bears an accompanying sadness. This reality is all the more pronounced
when we are forced to give up some part of the bodyparticularly
an organ associated with our sexuality or identity. Losing a breast
might be akin to a man losing a testicle, or perhaps his libido.
The loss of a breast can also cause a woman to relinquish some of
her confidence, her hope, even her zest for life. Or, just the opposite
may be true. Some women will cling all the more to what they need,
or may even reprioritize their lives out of sense of urgency.
A Caregivers Dilemma
Becky had access to a wealth of books and pamphlets about breast
cancer and how to cope with the diseasebut I had fewer resources
to draw from. She was surroundedquickly and efficientlyby
other women who had gone through the same procedures. But I often
felt alone and frustrated. Before the surgery, my wife spent long
hours on the telephone discussing all of her optionsthe solutions
and drawbackswith family and friends. I spent my time keeping
things together at home, helping the children, and managing the
day-to-day affairs so my wife would have this valuable time to strengthen
herself and clear her mind.
These are not complaints, just observationsand Im sure
my wife would agree with them. I was happy to take on this extra
load, not only for my wifes sake, but for my own peace of
mind and the distractions this busyness afforded me.
As the day of the surgery approached, I discovered that I was wrestling
with some frightful demons. These fears were largely unspoken, but
were real nonetheless. I began to worry about what my wifes
breast might look like following the mastectomynot because
I feared that I would be unable or unwilling to look at the scar,
but because I feared that Becky might feel unattractive in my presence.
I worried that I might not be strong enough to support her and the
children through her illness. And, yes, I also worried that, somehow,
the sexual chemistry of our marriage or our friendship might be
altered.
In one way or another, I dealt with all of these fears. In the end
I discovered that, while breast cancer certainly changed my wife,
it also changed me. It changed us. Not always for the best, nor
for the worst. But the illness did change our outlook on life, our
awareness of each other, and our image of what each of us desired
and needed.
I also emerged from this breast cancer ordeal with some firm beliefs
about the role men play in womens lives. There is something
instinctive, nearly animalistic, that rises within a man during
a time of crisis. There had never been a time in my life when I
was so territorial and protective. I was staking a claim to life,
waging a war against an unseen adversary. I protected our evenings,
screened phone calls, ran errands. I circled the wagon of our home
and marked large Xs on the calendar, blocking off entire days and
weeks.
I was able to be the protector when Becky needed strength and reassurance.
My nurturing instincts kicked in. I fluffed pillows, cleaned, prepared
breakfast in bed for my wife. I even made French toast and lit candles
by the bedside. I performed these tasks without any thought of reward
or sexual payback. This was a side of my masculinity I had not explored
with much regularity before, and I discovered that I enjoyed making
my wife comfortable.
Gradually, our lives began to even out and we assumed our familiar
way of life. But a part of me remained with my wifes pain,
a pain I am reminded of each time I look at her scar.
A New Perspective
Now every day counts for something. Together we have made parole;
we have beaten the rap; we have been set free to make our way in
the world. No matter what obstacles we will face tomorrow, we will
be able to size up the problem, weigh it against what we have already
defeated in the past.
This is the strange outcome of being a cancer survivor, of being
the one who walks alongside the patient who has stared death in
the face: We are bigger than we were before.
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